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Carrie Ostrea
Rare disease parent and advocate
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Category:
Families and communities we overlook
The Hardest Thing I Ever Made
October 1, 2026
Sharing Our Stories Is a Gift, and It Costs Us Every Time
September 22, 2026
Who Gets to Decide What a Family Wants to Know
September 8, 2026
What ‘Underserved’ Really Means in Rare Disease
June 30, 2026
She Built It From Nothing
June 14, 2026
