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Carrie Ostrea
Rare disease parent and advocate
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The Hardest Thing I Ever Made
October 1, 2026
Sharing Our Stories Is a Gift, and It Costs Us Every Time
September 22, 2026
Who Gets to Decide What a Family Wants to Know
September 8, 2026
We Closed Our Little Miss Hannah Foundation on Our Best Year
August 18, 2026
Your Rare Disease Experience Is Bigger Than One Community
July 7, 2026
What ‘Underserved’ Really Means in Rare Disease
June 30, 2026
She Built It From Nothing
June 14, 2026
The Geneticist’s Office
May 27, 2026
Steps to Take After Receiving a Rare Diagnosis
February 1, 2018
5 Steps to Becoming a Rare Disease Parent Advocate
October 1, 2017
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