Skip to content

Rare disease parent and advocate

Writing
About
Contact

Subscribe to the newsletter

Subscribe to Substack

Author: carrieostrea

Bringing Rare Disease to Stanford’s MedX

April 1, 2017

←Previous Page

1 2

Where to find me

For speaking, podcasts, media, or an advocacy connection, the form is the fastest way to contact me.

LinkedIn
Facebook

Thoughts from a Rare Life, my LinkedIn newsletter

Thoughts from a Rare Life, on Substack

Send me a note

Please enable JavaScript in your browser to complete this form.

Name *

First

Last

Message or Name

Email *

Comment or Message

© 2026 Carrie Ostrea

Views are my own, written as a rare disease parent and advocate.